The management of tumors in Sardinia has a thousand flaws, starting with the organizational ones. One of the sore points concerns the Tumor Registry. "Structures dedicated to the collection of information on all cases of tumors that occur among people residing in a specific administrative area". This is how the Istituto Superiore di Sanità defines a crucial healthcare reality for the oncology system. A subject of long-standing discussion among health workers, politicians and patients because there is a serious operational shortage on the Island.
AIRTUM notified it at a national level, and not only. In addition to the task of monitoring the temporal and spatial trend of tumors, the registries provide crucial information for health planning and for the correct management of resources (a very critical regional problem). On March 19, a complaint in the media by the patients' committee: no progress on the Sardinian tumor registry. The institution on the island dates back to 2012 with regional law no. 21 (article 1 paragraph 2a). The council resolutions 4/58 and 5/40, dated February 2024, identified the digital health and technological innovation department of ARES as the regional reference center for the tumor registry of the Sardinia Region.
However, nothing seems to be moving. On the ARES website, the market consultation aimed at starting a procedure for the purchase of a maintenance service for the Regional Tumor Registry, published on June 19, 2024 (therefore very far away in time from the February council resolutions) and expiring on July 4, 2024, currently reads “In progress”. Yet another story that defines the Sardinian oncology system in “red code”.