There are around 800 children suffering from rare diseases on the island, who regularly travel to Cagliari to receive the care they need. Or at least they hope to receive. Because, according to what the secretary of Fials, Giampaolo Cugliara, reports , "they are constantly denied treatment or procrastinated with unacceptable deadlines , destined", he explains, "to produce not improvements in the conditions of these small patients, but loss of the results achieved with consequent worsening of the health and living conditions of the entire family unit."

Many reports have already been received from the parents of the young patients, the same ones who are often forced to find alternative solutions: «Why must these children be forced to migrate to other centers in Italy with costs, unfortunately, not always affordable for the families ?" , asks Cugliara. "These are children who need constant care, prosthetics, wheelchairs, botulinum, a life-saving toxin for some, because in our land healthcare is deaf?".

Here Fials asks that we move on to the facts: «This clinic is a regional, not provincial, point of reference. We ask the Region", concludes Cugliara, "to intervene, to give answers and not promises because promises don't cure , and children, everyone needs treatment".

(Unioneonline)

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