For months, people with thalassemia throughout Sardinia have been suffering from the effects of numerous disruptions, in particular for the 450 patients of the Microcitemico Hospital of Cagliari there are repeated postponements of transfusion therapies.
The complaint comes from the president of Thalassa Action Onlus Aps, Maria Antonina Sebis.
"Despite the dedication and commitment of health workers - explains Sebis in a note - the serious shortage of staff in the transfusion centers, which it does not seem to be able to find a solution to, is bringing to its knees an appropriate supply of blood for the needs of the entire Sardinian population. This means for those who have to perform the blood transfusion every 15-20 days, not only living in uncertainty, in the impossibility of planning school, work and personal activities while waiting for the therapy, but undermine the serenity and well-being of patients, young and old, and their families ".
"We are going back 40 years - denounces the association - and we are no longer willing to tolerate this situation, we must safeguard our health and our quality of life. Despite the numerous appeals to the institutions responsible for organizing care and taking in the care of patients with Thalassemia, who refer to 14 different 'places' of care in the region, there is still no regional network that guarantees coordination in the multidisciplinary approach which is essential for an acceptable treatment of this pathology. and their families are suffering and the inertia of the Regional Health Department will ask for an account in the appropriate places of the damage caused to the entire category of people we represent ".
(Unioneonline / vl)
