" This swollen belly you see in photos, which most people think of as a sign of motherhood, is called 'endobelly' by many of us. Literally, endometriosis belly ." This is what influencer Giorgia Soleri wrote on Instagram in response to yet another question: "Are you pregnant? No offense, of course, but you look pretty fat (you're still beautiful)."

Soleri, instead of ignoring her, seized the opportunity to return to the discussion about the disease she's suffered from for years. Her first response comes in the first frame of the viral video: "No. I'm sick. No offense intended." Then, in the comments, she writes: "March is Endometriosis Awareness Month, and despite it affecting 1 in 9 women, too little is known about it and even less is talked about. This is demonstrated by the superimposed question, chosen randomly from the hundreds of similar ones I've received over the years."

Abdominal swelling , the influencer writes, is just one of the countless, often disabling, symptoms of this insidious disease. "Another is the possibility of suffering from infertility or subfertility, according to estimates in 40% to 50% of cases. This means that, if I were trying to conceive and it didn't come, that question could have broken me."

In her relationship with her body, she continues, "the challenge is not just learning to live with it despite the pain," but trying to accept all the changes that the disease and the treatments impose on her. "And to do so with a constant external, judgmental gaze." "But I," concludes the host of the popular podcast 'Un'ora sola ti vorrei', "don't want to be beautiful. I want to be listened to, believed, treated. I want to be seen by the healthcare system and protected by institutions. I want more education, action, awareness. I want more research, I want a cure. I want future sisters in pain not to have to wait an average of 10 years for a diagnosis, feeling branded along the way as crazy, anxious, liars, hysterical. So that none of them will ever have to live this nightmare again, or justify themselves when faced with questions like this."

(Unioneonline/vl)

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